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State of the States
State of the States: Fall 2023
North Carolina breaks budget impasse over Medicaid expansion Republican lawmakers in North Carolina finally agreed on a two-year budget bill in September, breaking the six-month impasse that prevented the state’s Medicaid expansion from going into effect as scheduled on July 1. Up to 600,000 residents are expected to gain Medicaid once
State of the States: Summer 2023
Three more states act to protect consumers from harmful copay accumulators Legislation ensuring health plan consumers have access to the lifeline that third-party copay assistance provides was signed this quarter by governors in Colorado (S.B. 195), New Mexico (S.B. 51), and Texas (H.B. 999), along with the mayor of the
State of the States: Spring 2023
States can resume Medicaid terminations in April, but most are holding back The U.S. Department of Health and Human Services (HHS) has notified state Medicaid programs that the COVID-19 public health emergency (PHE) will formally end on May 11, 2023. The PHE has been continuously renewed in 90-day increments since
State of the States: Winter 2022
States win authority to restart Medicaid eligibility determinations in April The omnibus spending legislation passed late in the year by Congress will let states resume Medicaid eligibility determinations in April 2023, even if the Administration decides to continue the COVID-19 public health emergency (PHE) past that time. The National Association
What's up in Washington?
Word from Washington: November 2023
HFA returned to Capitol Hill on Nov. 13 for its tenth annual Patient Fly-in and Congressional reception. Twenty-two community
Word from Washington: October 2023
Hemophilia Federation of America and allied patient advocates cheered a Sept. 29 court decision setting aside a federal rule
Court Overturns Accumulator Adjuster Rule
Court orders HHS to revise federal regulations permitting harmful copay accumulators In a preliminary victory for consumers, a federal
Word from Washington: September 2023
On Sept. 18, the Centers for Medicare and Medicaid Services (CMS) released final regulations that will make it easier
HFA News
Word from Washington: November 2023
HFA returned to Capitol Hill on Nov. 13 for its tenth annual Patient Fly-in and Congressional reception. Twenty-two community members from 16 different states came to Washington, D.C., for policy
HFA Project Featured in International, Peer-Reviewed Scientific Journal
Hemophilia Federation of America is excited to announce its work encouraging patient-centered research for females with bleeding disorders, conducted by members of its staff as well as trusted medical advisors
Word from Washington: October 2023
Hemophilia Federation of America and allied patient advocates cheered a Sept. 29 court decision setting aside a federal rule that harms people who rely on copay assistance. The rule at
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Industry & Medical News
Have a policy question? Confused about insurance issues? Ask Addy! The answer to your question may be the next Dear Addy.
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Dear Addy: SSI Eligibility
Dear Addy, I receive disability benefits under the Supplemental Security Income (SSI) program and, through SSI, qualify for Medicaid. I am concerned about hidden pitfalls
Dear Addy: Medicare Enrollment 2024
Dear Addy, I’ve been enrolled in Medicare for a couple of years now and am weighing my plan options for 2024. What do I need
Dear Addy: Back to School
Dear Addy, With school back in session, I want to make sure that my son’s needs as someone with a bleeding disorder are accounted for
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Podcasts
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Dateline Federation Magazine
Dateline contains the latest news and touching stories about the people in our vibrant community. Discover what’s happening on the state and national level, the latest in gene therapy and advancements, as well as valuable information that impacts the quality of life for the bleeding disorders community.
Infusing Love
Over the Rainbow
“3, 2, 1,” counting down, I held my breath and flipped the test over. There they were – two pink lines staring up at me.
A Breakfast with Love
On a typical day, mornings include waking up, getting out of bed, drinking coffee, taking a bath and starting your daily routine. The kids are
504 Plans
Hello, my name is Lupe Torres! I would like to start by thanking everyone for the opportunity to let me share my experience with the
Speaking from the Heart
In my family, we have always been very open about issues related to hemophilia. I already knew from a very young age that being the