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State of the States

State of the States: Fall 2023

North Carolina breaks budget impasse over Medicaid expansion Republican lawmakers in North Carolina finally agreed on a two-year budget bill in September, breaking the six-month impasse that prevented the state’s Medicaid expansion from going into effect as scheduled on July 1. Up to 600,000 residents are expected to gain Medicaid once

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State of the States: Summer 2023

Three more states act to protect consumers from harmful copay accumulators Legislation ensuring health plan consumers have access to the lifeline that third-party copay assistance provides was signed this quarter by governors in Colorado (S.B. 195), New Mexico (S.B. 51), and Texas (H.B. 999), along with the mayor of the

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State of the States: Spring 2023

States can resume Medicaid terminations in April, but most are holding back  The U.S. Department of Health and Human Services (HHS) has notified state Medicaid programs that the COVID-19 public health emergency (PHE) will formally end on May 11, 2023.  The PHE has been continuously renewed in 90-day increments since

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State of the States: Winter 2022

States win authority to restart Medicaid eligibility determinations in April The omnibus spending legislation passed late in the year by Congress will let states resume Medicaid eligibility determinations in April 2023, even if the Administration decides to continue the COVID-19 public health emergency (PHE) past that time. The National Association

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HFA News

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Word from Washington: November 2023

HFA returned to Capitol Hill on Nov. 13 for its tenth annual Patient Fly-in and Congressional reception. Twenty-two community members from 16 different states came to Washington, D.C., for policy

Word from Washington: October 2023

Hemophilia Federation of America and allied patient advocates cheered a Sept. 29 court decision setting aside a federal rule that harms people who rely on copay assistance. The rule at

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Have a policy question? Confused about insurance issues? Ask Addy! The answer to your question may be the next Dear Addy.

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Dear Addy: SSI Eligibility

Dear Addy, I receive disability benefits under the Supplemental Security Income (SSI) program and, through SSI, qualify for Medicaid. I am concerned about hidden pitfalls

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Dateline Federation Magazine

Dateline contains the latest news and touching stories about the people in our vibrant community. Discover what’s happening on the state and national level,  the latest in gene therapy and advancements, as well as valuable information that impacts the quality of life for the bleeding disorders community.

Community Stories

Infusing Love

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Over the Rainbow

“3, 2, 1,” counting down, I held my breath and flipped the test over. There they were – two pink lines staring up at me.

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A Breakfast with Love

On a typical day, mornings include waking up, getting out of bed, drinking coffee, taking a bath and starting your daily routine. The kids are

mom and son

504 Plans

Hello, my name is Lupe Torres! I would like to start by thanking everyone for the opportunity to let me share my experience with the

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Speaking from the Heart

In my family, we have always been very open about issues related to hemophilia. I already knew from a very young age that being the

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